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About the Disease

Venous Malformations are bluish lesions that are the result of veins that do not form properly due to genetic mutations during the embryonic stage of life.  The walls of these veins are unusually thin because they lack smooth muscle cells which cause them to stretch and cause problems.  As they grow, they form benign tumors.  Venous Malformations are most common in the skin, but can form in other tissues and organs as well.  The blood flow through these veins is extremely slow.  Venous Malformations occur in less than 1% of all births.  Very little was known about them until 2001.